Lisa Genova - Still Alice

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Still Alice: краткое содержание, описание и аннотация

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SUMMARY: "Powerful, insightful, tragic, inspirational…and all too true." Alireza Atri, Massachusetts General Hospital Neurologist “Readers…are artfully and realistically led through…a window into what to expect, highlighting the importance of allowing the person with the disease to remain a vibrant and contributing member of the community…" Peter Reed, PhD, Director of Programs, National Alzheimer's Association “With grace and compassion, Lisa Genova writes about the enormous white emptiness created by Alzheimer’s in the mind of the still-too-young and active Alice. A kind of ominous suspense attends her gathering forgetfulness, and Genova puts us, sympathetically, right inside her plight. Somehow, too, she portrays the family’s response as a loving one, and hints at the other hopeful, helpful response that science will eventually provide.” Mopsy Kennedy, Improper Bostonian "An intensely intimate portrait of Alzheimer's seasoned with highly accurate and useful information about this insidious and devastating disease." Dr. Rudolph E. Tanzi, co-author, Decoding Darkness: The Search for the Genetic Causes of Alzheimer's Disease “Her (Alice's) thought patterns are so eerily like my own...amazing. It was like being in my own head and like being in hers.” James Smith, diagnosed with Alzheimer’s, age 45 “...something for the world to read.” Jeanne Lee, author of Just Love Me: My Life Turned Upside-Down By Alzheimer’s “A laser-precise light into the lives of people with dementia and the people who love them.” Carole Mulliken, Co-Founder of DementiaUSA "A work of pure genius. This is the book that I and many of my colleagues have anxiously awaited. The reader will journey down Dementia Road in a way that only those of us with Dementia have experienced. Until now." Charley Schneider, author of Don't Bury Me, It Ain't Over Yet

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Thank you to Doug Coupe for sharing some specifics about acting and Los Angeles.

Thank you to Martha Brown, Anne Carey, Laurel Daly, Kim Howland, Mary MacGregor, and Chris O'Connor for reading each chapter, for your comments, encouragement, and wild enthusiasm.

Thank you to Diane Bartoli, Lyralen Kaye, Rose O'Donnell, and Richard Pepp for editorial feedback.

Thank you to Jocelyn Kelley at Kelley & Hall for being a phenomenal publicist.

An enormous thank-you to Beverly Beckham, who wrote the best review any self-published author could dream of. And you pointed the way to Julia Fox Garrison.

Julia, I cannot thank you enough. Your generosity has changed my life.

Thank you to Vicky Bijur for representing me and for insisting that I change the ending. You're brilliant.

Thank you to Louise Burke, John Hardy, Kathy Sagan, and Anthony Ziccardi for believing in this story.

I need to thank the very large and loud Genova family for shamelessly telling everyone you know to buy your daughter's/niece's/cousin's/sister's book. You're the best guerrilla marketers in the world!

I also need to thank the not as large but arguably just as loud Seufert family for spreading the word.

Last, I'd like to thank Christopher Seufert for technical and web support, for the original cover design, for helping me make the abstract tangible, and so much more, but mostly, for giving me butterflies.

CONTENTS

Acknowledgments

SEPTEMBER 2003

OCTOBER 2003

NOVEMBER 2003

DECEMBER 2003

JANUARY 2004

FEBRUARY 2004

MARCH 2004

APRIL 2004

MAY 2004

JUNE 2004

JULY 2004

AUGUST 2004

SEPTEMBER 2004

OCTOBER 2004

NOVEMBER 2004

DECEMBER 2004

JANUARY 2005

FEBRUARY 2005

MARCH 2005

APRIL 2005

MAY 2005

JUNE 2005

SUMMER 2005

SEPTEMBER 2005

EPILOGUE

POSTSCRIPT

Readers Club Guide for Still Alice

Even then, more than a year earlier, there were neurons in her head, not far from her ears, that were being strangled to death, too quietly for her to hear them. Some would argue that things were going so insidiously wrong that the neurons themselves initiated events that would lead to their own destruction. Whether it was molecular murder or cellular suicide, they were unable to warn her of what was happening before they died.

SEPTEMBER 2003

Alice sat at her desk in their bedroom distracted by the sounds of John racing through each of the rooms on the first floor. She needed to finish her peer review of a paper submitted to the Journal of Cognitive Psychology before her flight, and she'd just read the same sentence three times without comprehending it. It was 7:30 according to their alarm clock, which she guessed was about ten minutes fast. She knew from the approximate time and the escalating volume of his racing that he was trying to leave, but he'd forgotten something and couldn't find it. She tapped her red pen on her bottom lip as she watched the digital numbers on the clock and listened for what she knew was coming.

"Ali?"

She tossed her pen onto the desk and sighed. Downstairs, she found him in the living room on his knees, feeling under the couch cushions.

"Keys?" she asked.

"Glasses. Please don't lecture me, I'm late."

She followed his frantic glance to the fireplace mantel, where the antique Waltham clock, valued for its precision, declared 8:00. He should have known better than to trust it. The clocks in their home rarely knew the real time of day. Alice had been duped too often in the past by their seemingly honest faces and had learned long ago to rely on her watch. Sure enough, she lapsed back in time as she entered the kitchen, where the microwave insisted that it was only 6:52.

She looked across the smooth, uncluttered surface of the granite countertop, and there they were, next to the mushroom bowl heaping with unopened mail. Not under something, not behind something, not obstructed in any way from plain view. How could he, someone so smart, a scientist, not see what was right in front of him?

Of course, many of her own things had taken to hiding in mischievous little places as well. But she didn't admit this to him, and she didn't involve him in the hunt. Just the other day, John blissfully unaware, she'd spent a crazed morning looking first all over the house and then in her office for her BlackBerry charger. Stumped, she'd surrendered, gone to the store, and bought a new one, only to discover the old one later that night plugged in the socket next to her side of the bed, where she should have known to look. She could probably chalk it all up for both of them to excessive multitasking and being way too busy. And to getting older.

He stood in the doorway, looking at the glasses in her hand but not at her.

"Next time, try pretending you're a woman while you look," said Alice, smiling.

"I'll wear one of your skirts. Ali, please, I'm really late."

"The microwave says you have tons of time," she said, handing them to him.

"Thanks."

He grabbed them like a relay runner taking a baton in a race and headed for the front door.

"Will you be here when I get home on Saturday?" she asked his back as she followed him down the hallway.

"I don't know, I've got a huge day in lab on Saturday."

He collected his briefcase, phone, and keys from the hall table.

"Have a good trip, give Lydia a hug and kiss for me. And try not to battle with her," said John.

She caught their reflection in the hallway mirror--a distinguished-looking, tall man with white-flecked brown hair and glasses; a petite, curly-haired woman, her arms crossed over her chest, each readying to leap into that same, bottomless argument. She gritted her teeth and swallowed, choosing not to jump.

"We haven't seen each other in a while. Please try to be home?" she asked.

"I know, I'll try."

He kissed her, and although desperate to leave, he lingered in that kiss for an almost imperceptible moment. If she didn't know him better, she might've romanticized his kiss. She might've stood there, hopeful, thinking it said, I love you, I'll miss you. But as she watched him hustle down the street alone, she felt pretty certain he'd just told her, I love you, but please don't be pissed when I'm not home on Saturday.

They used to walk together over to Harvard Yard every morning. Of the many things she loved about working within a mile from home and at the same school, their shared commute was the thing she loved most. They always stopped at Jerri's--a black coffee for him, a tea with lemon for her, iced or hot, depending on the season--and continued on to Harvard Yard, chatting about their research and classes, issues in their respective departments, their children, or plans for that evening. When they were first married, they even held hands. She savored the relaxed intimacy of these morning walks with him, before the daily demands of their jobs and ambitions rendered them each stressed and exhausted.

But for some time now, they'd been walking over to Harvard separately. Alice had been living out of her suitcase all summer, attending psychology conferences in Rome, New Orleans, and Miami, and serving on an exam committee for a thesis defense at Princeton. Back in the spring, John's cell cultures had needed some sort of rinsing attention at an obscene hour each morning, but he didn't trust any of his students to show up consistently. So he did. She couldn't remember the reasons that predated spring, but she knew that each time they'd seemed reasonable and only temporary.

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