Connie Willis - Passage

“I don’t know how much you know about the disease,” Kit said, offering Joanna a cookie. “The first symptoms are little things, forgetting appointments, misplacing things—Uncle Pat kept losing his grade book and a couple of times he forgot a faculty meeting—the kind of things you put down to age or stress.” She put sugar in her tea and stirred it. “It was funny, you mentioning the Titanic yesterday, because that was how I realized there was something really wrong. I went to see the movie, which, having listened to Uncle Pat talk about the disaster for years, I hated.”

“I did, too,” Joanna said.

“Oh, good, then you know what I mean. Well, anyway, I came home and told Uncle Pat how the movie made everyone look like cowards, even Lightoller and Molly Brown, and how they’d gotten all kinds of facts wrong—like Murdoch shooting a passenger!—and he was furious, just like I knew he would be. He said he was going to write a stinging letter to James Cameron in the morning, and when I went up to bed, he had all his Titanic books out, looking things up so he could quote them exactly.”

She took a sip of tea. “The next morning I asked him if he’d written the letter yet,” she said, and all the despair of Amelia Tanaka and Greg Menotti was in her voice. “He didn’t have any memory of the letter or our conversation, not even of my having gone to the movie. He didn’t even know who Lightoller was.”

And yesterday I came blundering in, Joanna thought, not only talking about the Titanic, but asking Mr. Briarley if he remembered what he’d said in class. “Kit, I am so sorry,” she said. “If I’d known—”

“Oh, no, it’s okay. I just wanted you to know that was why I acted so peculiar yesterday, asking you if my mother had sent you and everything. My mother and I have a difference of opinion regarding Uncle Pat’s care. She’s always sending people over to try to talk me into putting him into a care facility. She thinks taking care of him is too much for me.”

I can see why she thinks that, Joanna thought, looking at Kit’s painfully thin collarbones, her shadowed eyes. She had said Mr. Briarley wasn’t sleeping. Joanna would bet she wasn’t either.

“I know Uncle Pat will have to be institutionalized someday,” Kit said, “but I want him to be able to stay here as long as he can. He was very kind to me, and—anyway, when you said you worked at Mercy General, I assumed—what do you do at Mercy General?” she asked curiously.

“I’m a cognitive psychologist,” Joanna said and wondered if she should let it go at that, but Kit reminded her of Maisie in more ways than one, and Maisie hated not being told the truth. “I’m working on a research project involving near-death experiences,” she said. “You know, the tunnel-and-light phenomenon?”

Kit nodded. “I read The Light at the End of the Tunnel. My cousin made me read it after—” She stopped, her cheeks red with anger or embarrassment.

And what could be worse than discovering your uncle had Alzheimer’s? Joanna thought. Having your cousin comfort you by inflicting Maurice Mandrake on you.

“You don’t work with Mr. Mandrake, do you?” Kit asked challengingly.

“No,” Joanna said.

“Good. I thought it was a horrible book. ‘Don’t worry, the dead aren’t really dead, and they aren’t really gone. They can still send messages to you from the Other Side.’ ”

“I know. I work with Dr. Wright. He’s a neurologist. We’re trying to figure out what near-death experiences are and why the dying brain experiences them.”

“The dying brain?” Kit said. “Does that mean everyone has them? I thought they were something only a few people had.”

“No, about sixty percent of revived patients report having a near-death experience, and those are concentrated in certain kinds of deaths—heart attacks, hemorrhaging, trauma.”

“You mean like car accidents?” Kit asked.

“Yes, and stabbings, industrial accidents, shootings. Of course there’s no way to tell how many people who aren’t revived have them.”

“But they’re pleasant, for the ones who do have them, I mean?” Kit said. “They’re not frightening?”

Joanna thought of the young woman, standing out on deck, asking the steward, “What’s happened?” her voice filled with fear. And Amelia, saying, “Oh, no, oh, no, oh, no.”

“Are they frightening?” Kit asked. “Uncle Pat has hallucinations sometimes. He sees people standing at the foot of his bed or in the door.”

In the door. Joanna would have to tell Richard that. Alzheimer’s was caused by a malfunctioning of neurochemicals. Maybe there was a connection.

“…and sometimes the things he’s saying seem to indicate he’s reliving past events,” Kit was saying.

L+R, Joanna thought. “Most people who’ve had near-death experiences report feeling warm and safe and loved,” she said reassuringly. “Dr. Wright’s found evidence of elevated endorphin levels, which supports that.”

“Good,” Kit said and then shook her head. “Uncle Pat’s are almost always upsetting or frightening things. It’s like he can’t forget them and can’t remember them at the same time, and he goes over and over them. It’s like he’s trying to make sense of them, even though his memory of them is gone.” She put her hands over her face for a moment. “The books say not to confront him or contradict him, but not to go along with the hallucination either, which is hard.”

“It sounds like it’s all hard,” Joanna said.

Kit smiled wryly. “I thought a sudden death was the worst thing that could possibly happen, and now it’s obvious it’s not.” She sat up. “I’m sorry, you don’t want to hear all this. I didn’t mean to go on like that. It’s just that I hardly ever get to talk to anybody about this, and when I do, I—” She made a face. “I obviously need to get out more.”

“You should come to Dish Night tomorrow night,” Joanna said impulsively.

“Dish Night?”

“Yes. It’s not an organized event or anything, just a casual get-together. Dr. Wright comes, and my friend Vielle—you’d love her. We get together and watch movies on video and eat and talk. Mostly talk. We use it as a safety valve, and it sounds like you could use one, too. Do you like movies?”

“Yes. I haven’t seen one in a long time. Uncle Pat confuses what’s happening on the screen with reality. That’s a common occurrence with Alzheimer’s patients, too. It would be wonderful to watch a movie, but…” She shook her head. “Thanks, but I’m afraid I can’t.”

“Is it because you don’t have anyone to stay with him?”

“Oh, no, my mother comes over when I have to go to the grocery store, but—” She was looking at the pan cupboard, and Joanna could guess what she was thinking. If Mr. Briarley took all the pans out again, her mother would use it as ammunition for putting Mr. Briarley in a care facility.

“Have you ever used Eldercare?” Joanna asked. “Mercy General has a program where the caregivers come to your home. They’re very good. I know one of the people who works with the program. I’d be glad to call her.”

“But if Dish Night is tomorrow night?”

“They have a twelve-hour emergency program,” Joanna said. “They know the people who call them are usually at the end of their rope. They have caregivers specifically trained in Alzheimer’s,” she said, but Kit was already shaking her head.

“They sound wonderful, but I’m always afraid something will happen while I’m gone, and if I call home to check, that can upset him,” she said. “So thank you for inviting me, but I’d better not.”

“You should get a pager,” Joanna said, pulling hers out of her pocket to show her. “Or a cell phone. That way they could reach you wherever you are.” Unless she left it in the car while she ran into the grocery store, like Greg Menotti’s girlfriend.