Jenny Downham - Before I Die aka Now is Good

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Tessa has just months to live. Fighting back against hospital visits, endless tests, drugs with excruciating side-effects, Tessa compiles a list. It's her To Do Before I Die list. And number one is Sex. Released from the constraints of '-normal' life, Tessa tastes new experiences to make her feel alive while her failing body struggles to keep up. Tessa's feelings, her relationships with her father and brother, her estranged mother, her best friend, and her new boyfriend, all are painfully crystallised in the precious weeks before Tessa's time finally runs out.

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Adam brushes my cheek with one finger. Then he pulls me close and kisses me. On my cheek. On my chin. On my other cheek. Then on my mouth. Very gently.

‘I’d come with you if I could.’

‘It’s very scary.’

He nods. ‘I’m very brave.’

I know he is. How many people would be here with me in the first place?

‘Adam, there’s something I need to ask you.’

He waits. His head next to mine on the pillow, his eyes calm. It’s difficult. I can’t find the words. The books on the shelf above seem to sigh and shuffle.

He sits up and hands me a pen. ‘Write it on the wall.’

I look at all the things I’ve written there over the months. Scrawls of desire. There’s so much more I could add. A joint bank account, singing in the bath with him, listening to him snore for years and years.

‘Go on,’ he says. ‘I have to go soon.’

And it’s these words, with an edge of the outside world in them, of things to do and places to be, that allows me to write.

I want you to move in with me. I want the nights . I write it quickly in really bad handwriting, so maybe he won’t be able to read it. Then I hide under the duvet.

There’s a second’s pause.

‘I can’t, Tess.’

I struggle out from the duvet. I can’t see his face, just a glimpse of light reflected in his eyes. Stars shining there perhaps. Or the moon.

‘Because you don’t want to?’

‘I can’t leave my mum by herself.’

I hate his mother, the lines on her forehead and round her eyes. I hate her wounded look. She lost her husband, but she didn’t lose anything else.

‘Can’t you come back when she’s asleep?’

‘No.’

‘Have you even asked her?’

He gets out of bed without touching me and puts on his clothes. I wish it was possible to smear cancer cells onto his arse. I could reach from here, and he’d be mine for ever. I’d lift the carpet and haul him under the floor to the foundations of the house. We’d make love in front of the worms. My fingers would reach under his skin.

‘I’ll haunt you,’ I tell him. ‘But from the inside. Every time you cough you’ll think of me.’

‘Stop messing with my head,’ he says.

And then he leaves.

I grab my clothes and follow him. He gets his jacket from the banister. I hear him walk through the kitchen and open the back door.

He’s still standing on the step when I catch up. Beyond him, out in the garden, great flakes of snow are swirling down. It must have started when we went upstairs. The path’s covered, the grass too. The sky’s full of it. The world seems silent and smaller.

‘You wanted snow.’ He puts out a hand to catch a flake and shows it to me. It’s a proper one, like I used to cut out of doilies and stick on the windows at primary school. We watch it melt into his palm.

I get my coat. Adam finds my boots, scarf and hat, and helps me down the step. My breath is frost. It’s snowing so much our footprints are wiped out as soon as we make them.

The snow on the lawn is deeper; it creaks as we stand on it. We cross the newness of it together. We tramp our names, trying to wear it out, to reach the grass beneath. But fresh snow covers every mark we make.

‘Watch,’ Adam says.

He lies flat on his back and flaps his arms and legs. He yells at how cold it is on his neck, his head. He jumps up again, stamps the snow off his trousers.

‘For you,’ he says. ‘A snow angel.’

It’s the first time he’s looked at me since I wrote on the wall. His eyes are sad.

‘Ever had snow ice cream?’ I ask.

I send him indoors for a bowl, icing sugar, vanilla, a spoon. He follows my instructions, scoops handfuls of snow into the bowl, whisks all the ingredients together. It turns to mush, goes brown, tastes weird. It isn’t how I remember it when I was a kid.

‘Maybe it’s yoghurt and orange juice.’

He rushes off. Comes back. We try again. It’s worse, but this time he laughs.

‘Beautiful mouth,’ I tell him.

‘You’re shivering,’ he says. ‘You should go in.’

‘Not without you.’

He looks at his watch.

I say, ‘What do you call a snowman in the desert?’

‘I need to go, Tess.’

‘A puddle.’

‘Seriously.’

‘You can’t leave now, there’s a snowstorm. I’ll never find my way back home.’

I undo my zip. I let my coat fall open so my shoulder’s exposed. Earlier, Adam spent minutes kissing this particular bit of shoulder. He blinks at me. Snow falls onto his eyelashes.

He says, ‘What do you want from me, Tess?’

‘Night time.’

‘What do you really want?’

I knew he’d understand.

‘I want you to be with me in the dark. To hold me. To keep loving me. To help me when I get scared. To come right to the edge and see what’s there.’

He looks really deeply at me. ‘What if I get it wrong?’

‘It’s impossible to get wrong.’

‘I might let you down.’

‘You won’t.’

‘I might get freaked out.’

‘It doesn’t matter. I just want you to be there.’

He gazes at me across the winter garden. His eyes are very green. In them I see his future stretching before him. I don’t know what he sees in mine. But he’s brave. I always knew it about him. He takes my hand and leads me back inside.

Upstairs I feel heavier, like the bed glued itself to me and is sucking me down. Adam takes ages getting undressed, then stands there shivering in his boxer shorts.

‘Shall I get in then?’

‘Only if you want to.’

He rolls his eyes, as if there’s no winning with me. It’s so difficult to get what I want. I worry that people only give me things because they feel guilty. I want Adam to want to be here. How will I ever tell the difference?

‘Shouldn’t we tell your mum?’ I ask as he climbs in beside me.

‘I’ll tell her tomorrow. She’ll survive.’

‘You’re not doing this because you feel sorry for me, are you?’

He shakes his head. ‘Stop it, Tess.’

We wrap ourselves together, but the shiver of snow is still with us; our hands and feet are ice. We cycle our legs to keep warm. He rubs me, strokes me. He scoops me into his arms again. I feel his prick grow. It makes me laugh. He laughs too, but nervously, as if I’m laughing at him.

‘Do you want me?’ I say.

He smiles. ‘I always want you. But it’s late, you should go to sleep.’

The snow makes the world outside brighter. Light filters through the window. I fall asleep watching the glimmer and sheen of it on his skin.

When I wake up, it’s still night and he’s asleep. His hair is dark on the pillow, his arm slung across me as if he can hold me here. He sighs, stops breathing, stirs, breathes again. He’s in the middle bit of sleep – a part of this world, but also part of another. This is strangely comforting to me.

His being here doesn’t stop my legs hurting though. I leave him the duvet, wrap myself in the blanket and stumble to the bathroom for codeine.

When I come out, Dad’s on the landing in his dressing gown. I’d forgotten he even existed. He’s not wearing slippers. His toes look very long and grey.

‘You must be getting old,’ I tell him. ‘Old people get up in the night.’

He pulls his dressing gown tighter. ‘I know Adam’s in there with you.’

‘And is Mum in there with you?’

This seems an important point, but he chooses to ignore it. ‘You did this without my permission.’

I look down at the carpet and hope he gets this over with quickly. My legs feel full up, as if my bones are swelling. I shuffle my feet.

‘I’m not out to spoil the fun, Tess, but it’s my job to look after you and I don’t want you hurt.’

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