Sarah DiGregorio - An Intimate History of Premature Birth

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Inspired by Sarah DiGregorio’s harrowing experience giving birth to her premature daughter, Early is a compelling and empathetic blend of memoir and rigorous reporting that tells the story of neonatology – and explores the questions raised by premature birth. ‘A definitive history of neonatology, written with urgency and clarity, beauty and compassion. DiGregorio is at once a clear-eyed reporter and a mother who has lived through the reality of neonatal intensive care, and her balance of the two narrative strands is pitch-perfect. A popular science book that deserves its place among the best’ Francesca Segal, author of Mother ShipThe heart of many hospitals is the Neonatal Intensive Care Unit (NICU). It is a place where humanity, ethics, and science collide in dramatic and deeply personal ways as parents, doctors, and nurses grapple with sometimes unanswerable questions: When does life begin? When and how should life end? And what does it mean to be human?For the first time, Sarah DiGregorio tells the complete story of this science – and the many people it has touched. Weaving her own experiences and those of NICU clinicians and other parents with deeply researched reporting, An Intimate History of Premature Birth delves deep into the history and future of neonatology, one of the most boundary pushing medical disciplines: how it came to be, how it is evolving, and the political, cultural, and ethical issues that continue to arise in the face of dramatic scientific developments.Previously published as Early

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AN INTIMATE HISTORY OF PREMATURE BIRTH

And What It Teaches Us About Being Human

Sarah DiGregorio

An Intimate History of Premature Birth - изображение 1

Copyright Contents Cover Title Page Copyright Dedication Author’s Note Prologue: One Birth Part I: The Unexpected: Millions of Births 1. What Happened? 2. Treatments and Outcomes 3. Viability and the Zone of Parental Discretion Part II: The Body: Incubation 4. The History of Incubation: Coney Island, Chicken Eggs, and Changelings 5. The Modern Incubator, or How to Build a Giraffe 6. The Incubators of the Future: Babies in Bags Part III: The Breath: Treating Respiratory Distress 7. Dr. Mildred Stahlman and the Miniature Iron Lung 8. Dr. Maria Delivoria-Papadopoulos and the Rugged Machine 9. JFK’s Lost Baby and the Advent of Surfactant Part IV: The Self: Protecting the Premature Brain 10. The Revolutionary Practice of Listening to Preemies 11. Follow-up Care: Preemie Development Beyond the NICU Part V: The Threshold: End-of-Life Issues at Birth 12. What Should We Do for 22-Week Babies? 13. Knowing When to Stop 14. Choice, Decisions, and the Messiness of Real Life Part VI: The Crisis: The Body Under Stress 15. Racism Causes Preterm Birth 16. What Prematurity Means in Mississippi 17. Group Prenatal Care and the Power of Community Part VII: The Invisibles: Breaking the Silence 18. The Hidden Trauma of Prematurity 19. Grown Preemies Speak for Themselves Epilogue Notes Index Acknowledgments About the Author About the Publisher

4th Estate

An imprint of HarperCollins Publishers

1 London Bridge Street

London SE1 9GF

www.4thEstate.co.uk

HarperCollins Publishers

1st Floor, Watermarque Building, Ringsend Road

Dublin 4, Ireland

This ebook first published in Great Britain in 2020 by 4th Estate

First published in the United States by Harper in 2020

Copyright © Sarah DiGregorio 2020

Cover photograph © Jill Lehmann Photography / Getty Images; cover design Ellie Game

Sarah DiGregorio asserts the moral right to be identified as the author of this work

A catalogue record for this book is available from the British Library

Epigraph here from The Ground Beneath Her Feet by Salman Rushdie © 1999. Published by Jonathan Cape.

Reprinted by permission of The Random House Group.

All rights reserved under International and Pan-American Copyright Conventions. By payment of the required fees, you have been granted the non-exclusive, non-transferable right to access and read the text of this e-book on-screen. No part of this text may be reproduced, transmitted, down-loaded, decompiled, reverse engineered, or stored in or introduced into any information storage and retrieval system, in any form or by any means, whether electronic or mechanical, now known or hereinafter invented, without the express written permission of HarperCollins

Source ISBN: 9780008354947

Ebook Edition © January 2021 ISBN: 9780008354923

Version: 2020-12-22

Dedication Contents Cover Title Page Copyright Dedication Author’s Note Prologue: One Birth Part I: The Unexpected: Millions of Births 1. What Happened? 2. Treatments and Outcomes 3. Viability and the Zone of Parental Discretion Part II: The Body: Incubation 4. The History of Incubation: Coney Island, Chicken Eggs, and Changelings 5. The Modern Incubator, or How to Build a Giraffe 6. The Incubators of the Future: Babies in Bags Part III: The Breath: Treating Respiratory Distress 7. Dr. Mildred Stahlman and the Miniature Iron Lung 8. Dr. Maria Delivoria-Papadopoulos and the Rugged Machine 9. JFK’s Lost Baby and the Advent of Surfactant Part IV: The Self: Protecting the Premature Brain 10. The Revolutionary Practice of Listening to Preemies 11. Follow-up Care: Preemie Development Beyond the NICU Part V: The Threshold: End-of-Life Issues at Birth 12. What Should We Do for 22-Week Babies? 13. Knowing When to Stop 14. Choice, Decisions, and the Messiness of Real Life Part VI: The Crisis: The Body Under Stress 15. Racism Causes Preterm Birth 16. What Prematurity Means in Mississippi 17. Group Prenatal Care and the Power of Community Part VII: The Invisibles: Breaking the Silence 18. The Hidden Trauma of Prematurity 19. Grown Preemies Speak for Themselves Epilogue Notes Index Acknowledgments About the Author About the Publisher

For Phyllis and Mira, my mother and my daughter, who taught me how to be brave.

And with gratitude to the nurses, physicians, and thinkers who were our partners in gestation.

Contents

Cover

Title Page AN INTIMATE HISTORY OF PREMATURE BIRTH And What It Teaches Us About Being Human

Copyright

Dedication

Author’s Note

Prologue: One Birth

Part I: The Unexpected: Millions of Births

1. What Happened?

2. Treatments and Outcomes

3. Viability and the Zone of Parental Discretion

Part II: The Body: Incubation

4. The History of Incubation: Coney Island, Chicken Eggs, and Changelings

5. The Modern Incubator, or How to Build a Giraffe

6. The Incubators of the Future: Babies in Bags

Part III: The Breath: Treating Respiratory Distress

7. Dr. Mildred Stahlman and the Miniature Iron Lung

8. Dr. Maria Delivoria-Papadopoulos and the Rugged Machine

9. JFK’s Lost Baby and the Advent of Surfactant

Part IV: The Self: Protecting the Premature Brain

10. The Revolutionary Practice of Listening to Preemies

11. Follow-up Care: Preemie Development Beyond the NICU

Part V: The Threshold: End-of-Life Issues at Birth

12. What Should We Do for 22-Week Babies?

13. Knowing When to Stop

14. Choice, Decisions, and the Messiness of Real Life

Part VI: The Crisis: The Body Under Stress

15. Racism Causes Preterm Birth

16. What Prematurity Means in Mississippi

17. Group Prenatal Care and the Power of Community

Part VII: The Invisibles: Breaking the Silence

18. The Hidden Trauma of Prematurity

19. Grown Preemies Speak for Themselves

Epilogue

Notes

Index

Acknowledgments

About the Author

About the Publisher

Author’s Note Contents Cover Title Page AN INTIMATE HISTORY OF PREMATURE BIRTH And What It Teaches Us About Being Human Copyright Dedication Author’s Note Prologue: One Birth Part I: The Unexpected: Millions of Births 1. What Happened? 2. Treatments and Outcomes 3. Viability and the Zone of Parental Discretion Part II: The Body: Incubation 4. The History of Incubation: Coney Island, Chicken Eggs, and Changelings 5. The Modern Incubator, or How to Build a Giraffe 6. The Incubators of the Future: Babies in Bags Part III: The Breath: Treating Respiratory Distress 7. Dr. Mildred Stahlman and the Miniature Iron Lung 8. Dr. Maria Delivoria-Papadopoulos and the Rugged Machine 9. JFK’s Lost Baby and the Advent of Surfactant Part IV: The Self: Protecting the Premature Brain 10. The Revolutionary Practice of Listening to Preemies 11. Follow-up Care: Preemie Development Beyond the NICU Part V: The Threshold: End-of-Life Issues at Birth 12. What Should We Do for 22-Week Babies? 13. Knowing When to Stop 14. Choice, Decisions, and the Messiness of Real Life Part VI: The Crisis: The Body Under Stress 15. Racism Causes Preterm Birth 16. What Prematurity Means in Mississippi 17. Group Prenatal Care and the Power of Community Part VII: The Invisibles: Breaking the Silence 18. The Hidden Trauma of Prematurity 19. Grown Preemies Speak for Themselves Epilogue Notes Index Acknowledgments About the Author About the Publisher

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