AN INTIMATE HISTORY OF PREMATURE BIRTH
And What It Teaches Us About Being Human
Copyright Contents Cover Title Page Copyright Dedication Author’s Note Prologue: One Birth Part I: The Unexpected: Millions of Births 1. What Happened? 2. Treatments and Outcomes 3. Viability and the Zone of Parental Discretion Part II: The Body: Incubation 4. The History of Incubation: Coney Island, Chicken Eggs, and Changelings 5. The Modern Incubator, or How to Build a Giraffe 6. The Incubators of the Future: Babies in Bags Part III: The Breath: Treating Respiratory Distress 7. Dr. Mildred Stahlman and the Miniature Iron Lung 8. Dr. Maria Delivoria-Papadopoulos and the Rugged Machine 9. JFK’s Lost Baby and the Advent of Surfactant Part IV: The Self: Protecting the Premature Brain 10. The Revolutionary Practice of Listening to Preemies 11. Follow-up Care: Preemie Development Beyond the NICU Part V: The Threshold: End-of-Life Issues at Birth 12. What Should We Do for 22-Week Babies? 13. Knowing When to Stop 14. Choice, Decisions, and the Messiness of Real Life Part VI: The Crisis: The Body Under Stress 15. Racism Causes Preterm Birth 16. What Prematurity Means in Mississippi 17. Group Prenatal Care and the Power of Community Part VII: The Invisibles: Breaking the Silence 18. The Hidden Trauma of Prematurity 19. Grown Preemies Speak for Themselves Epilogue Notes Index Acknowledgments About the Author About the Publisher
4th Estate
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This ebook first published in Great Britain in 2020 by 4th Estate
First published in the United States by Harper in 2020
Copyright © Sarah DiGregorio 2020
Cover photograph © Jill Lehmann Photography / Getty Images; cover design Ellie Game
Sarah DiGregorio asserts the moral right to be identified as the author of this work
A catalogue record for this book is available from the British Library
Epigraph here
from The Ground Beneath Her Feet by Salman Rushdie © 1999. Published by Jonathan Cape.
Reprinted by permission of The Random House Group.
All rights reserved under International and Pan-American Copyright Conventions. By payment of the required fees, you have been granted the non-exclusive, non-transferable right to access and read the text of this e-book on-screen. No part of this text may be reproduced, transmitted, down-loaded, decompiled, reverse engineered, or stored in or introduced into any information storage and retrieval system, in any form or by any means, whether electronic or mechanical, now known or hereinafter invented, without the express written permission of HarperCollins
Source ISBN: 9780008354947
Ebook Edition © January 2021 ISBN: 9780008354923
Version: 2020-12-22
Dedication Contents Cover Title Page Copyright Dedication Author’s Note Prologue: One Birth Part I: The Unexpected: Millions of Births 1. What Happened? 2. Treatments and Outcomes 3. Viability and the Zone of Parental Discretion Part II: The Body: Incubation 4. The History of Incubation: Coney Island, Chicken Eggs, and Changelings 5. The Modern Incubator, or How to Build a Giraffe 6. The Incubators of the Future: Babies in Bags Part III: The Breath: Treating Respiratory Distress 7. Dr. Mildred Stahlman and the Miniature Iron Lung 8. Dr. Maria Delivoria-Papadopoulos and the Rugged Machine 9. JFK’s Lost Baby and the Advent of Surfactant Part IV: The Self: Protecting the Premature Brain 10. The Revolutionary Practice of Listening to Preemies 11. Follow-up Care: Preemie Development Beyond the NICU Part V: The Threshold: End-of-Life Issues at Birth 12. What Should We Do for 22-Week Babies? 13. Knowing When to Stop 14. Choice, Decisions, and the Messiness of Real Life Part VI: The Crisis: The Body Under Stress 15. Racism Causes Preterm Birth 16. What Prematurity Means in Mississippi 17. Group Prenatal Care and the Power of Community Part VII: The Invisibles: Breaking the Silence 18. The Hidden Trauma of Prematurity 19. Grown Preemies Speak for Themselves Epilogue Notes Index Acknowledgments About the Author About the Publisher
For Phyllis and Mira, my mother and my daughter, who taught me how to be brave.
And with gratitude to the nurses, physicians, and thinkers who were our partners in gestation.
Contents
Cover
Title Page AN INTIMATE HISTORY OF PREMATURE BIRTH And What It Teaches Us About Being Human
Copyright
Dedication
Author’s Note
Prologue: One Birth
Part I: The Unexpected: Millions of Births
1. What Happened?
2. Treatments and Outcomes
3. Viability and the Zone of Parental Discretion
Part II: The Body: Incubation
4. The History of Incubation: Coney Island, Chicken Eggs, and Changelings
5. The Modern Incubator, or How to Build a Giraffe
6. The Incubators of the Future: Babies in Bags
Part III: The Breath: Treating Respiratory Distress
7. Dr. Mildred Stahlman and the Miniature Iron Lung
8. Dr. Maria Delivoria-Papadopoulos and the Rugged Machine
9. JFK’s Lost Baby and the Advent of Surfactant
Part IV: The Self: Protecting the Premature Brain
10. The Revolutionary Practice of Listening to Preemies
11. Follow-up Care: Preemie Development Beyond the NICU
Part V: The Threshold: End-of-Life Issues at Birth
12. What Should We Do for 22-Week Babies?
13. Knowing When to Stop
14. Choice, Decisions, and the Messiness of Real Life
Part VI: The Crisis: The Body Under Stress
15. Racism Causes Preterm Birth
16. What Prematurity Means in Mississippi
17. Group Prenatal Care and the Power of Community
Part VII: The Invisibles: Breaking the Silence
18. The Hidden Trauma of Prematurity
19. Grown Preemies Speak for Themselves
Epilogue
Notes
Index
Acknowledgments
About the Author
About the Publisher
Author’s Note Contents Cover Title Page AN INTIMATE HISTORY OF PREMATURE BIRTH And What It Teaches Us About Being Human Copyright Dedication Author’s Note Prologue: One Birth Part I: The Unexpected: Millions of Births 1. What Happened? 2. Treatments and Outcomes 3. Viability and the Zone of Parental Discretion Part II: The Body: Incubation 4. The History of Incubation: Coney Island, Chicken Eggs, and Changelings 5. The Modern Incubator, or How to Build a Giraffe 6. The Incubators of the Future: Babies in Bags Part III: The Breath: Treating Respiratory Distress 7. Dr. Mildred Stahlman and the Miniature Iron Lung 8. Dr. Maria Delivoria-Papadopoulos and the Rugged Machine 9. JFK’s Lost Baby and the Advent of Surfactant Part IV: The Self: Protecting the Premature Brain 10. The Revolutionary Practice of Listening to Preemies 11. Follow-up Care: Preemie Development Beyond the NICU Part V: The Threshold: End-of-Life Issues at Birth 12. What Should We Do for 22-Week Babies? 13. Knowing When to Stop 14. Choice, Decisions, and the Messiness of Real Life Part VI: The Crisis: The Body Under Stress 15. Racism Causes Preterm Birth 16. What Prematurity Means in Mississippi 17. Group Prenatal Care and the Power of Community Part VII: The Invisibles: Breaking the Silence 18. The Hidden Trauma of Prematurity 19. Grown Preemies Speak for Themselves Epilogue Notes Index Acknowledgments About the Author About the Publisher
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