Sarah DiGregorio - An Intimate History of Premature Birth

Здесь есть возможность читать онлайн «Sarah DiGregorio - An Intimate History of Premature Birth» — ознакомительный отрывок электронной книги совершенно бесплатно, а после прочтения отрывка купить полную версию. В некоторых случаях можно слушать аудио, скачать через торрент в формате fb2 и присутствует краткое содержание. Жанр: unrecognised, на английском языке. Описание произведения, (предисловие) а так же отзывы посетителей доступны на портале библиотеки ЛибКат.

An Intimate History of Premature Birth: краткое содержание, описание и аннотация

Предлагаем к чтению аннотацию, описание, краткое содержание или предисловие (зависит от того, что написал сам автор книги «An Intimate History of Premature Birth»). Если вы не нашли необходимую информацию о книге — напишите в комментариях, мы постараемся отыскать её.

Inspired by Sarah DiGregorio’s harrowing experience giving birth to her premature daughter, Early is a compelling and empathetic blend of memoir and rigorous reporting that tells the story of neonatology – and explores the questions raised by premature birth. ‘A definitive history of neonatology, written with urgency and clarity, beauty and compassion. DiGregorio is at once a clear-eyed reporter and a mother who has lived through the reality of neonatal intensive care, and her balance of the two narrative strands is pitch-perfect. A popular science book that deserves its place among the best’ Francesca Segal, author of Mother ShipThe heart of many hospitals is the Neonatal Intensive Care Unit (NICU). It is a place where humanity, ethics, and science collide in dramatic and deeply personal ways as parents, doctors, and nurses grapple with sometimes unanswerable questions: When does life begin? When and how should life end? And what does it mean to be human?For the first time, Sarah DiGregorio tells the complete story of this science – and the many people it has touched. Weaving her own experiences and those of NICU clinicians and other parents with deeply researched reporting, An Intimate History of Premature Birth delves deep into the history and future of neonatology, one of the most boundary pushing medical disciplines: how it came to be, how it is evolving, and the political, cultural, and ethical issues that continue to arise in the face of dramatic scientific developments.Previously published as Early

An Intimate History of Premature Birth — читать онлайн ознакомительный отрывок

Ниже представлен текст книги, разбитый по страницам. Система сохранения места последней прочитанной страницы, позволяет с удобством читать онлайн бесплатно книгу «An Intimate History of Premature Birth», без необходимости каждый раз заново искать на чём Вы остановились. Поставьте закладку, и сможете в любой момент перейти на страницу, на которой закончили чтение.

Тёмная тема
Сбросить

Интервал:

Закладка:

Сделать

As Mira’s due date approached, she started to seem more like a baby. First, she got to wear clothes—a preemie-sized onesie that hung off her. After about six weeks on CPAP, she graduated to a nasal cannula that delivered oxygen, and then nothing at all. At around 33 weeks’ gestational age, an occupational therapist taught us how to bottle-feed her, very slowly to avoid overwhelming her, which would inevitably lead to her forgetting to breathe and having an episode. After a few weeks of that, they took her feeding tube out. For the first time, nearly two months after her birth, we saw her face clearly, freed of the tubes and tape. One morning Amol and I came in and found her awake, her huge gray eyes looking around, as though she had just arrived—which, in a way, she had.

Finally, she hit four pounds. Now we were waiting for the bradys to go away. The policy was that she had to be episode-free for three days to go home, and if she had one, the clock was reset. She had gone two episode-free days when she had another one, while drinking a bottle. The attending neonatologist decided that, since the brady happened only because she got overwhelmed while eating, it didn’t count. Presumably if her heart stopped while we were feeding her at home, we’d notice, as opposed to if it happened while she was sleeping, when we might not. I did not find this reassuring. I wanted to take her home, but I was terrified to take her home.

The next day, January 27, fifty-nine days after her birth and twenty days before her due date, Mira was unhooked for the first time from the monitor that tracked her heart rate, respiratory rate, and blood oxygenation, and we were told we could go home. It felt radical, like free-fall. It had snowed the day before, and I sat in the back seat with her, barely breathing myself, as Amol drove slowly down the icy FDR Drive to the Brooklyn–Battery Tunnel, all of us retracing our steps for the first time together since the Sunday morning in November when she was born.

OUR STORY IS like a kaleidoscope of lucky versus unlucky: The pattern shifts depending on how you look at it. We had excellent prenatal care; if we hadn’t had that extra monitoring, Mira would likely have been stillborn. Only about 1.6 percent of babies are born before 32 weeks; only about 0.5 percent are born weighing less than 1,000 grams. We had made it four weeks past what anyone would consider the viability line. But being IUGR increased her risk of death or disability to the equivalent of babies born two to three weeks earlier, 25 or 26 weeks. She was born in a hospital with a level four NICU, the best. Ours was one of the many preterm births for which there was no answer as to why the problem happened—no risk factors, no health problems, no reason.

The incredible truth is that, from a medical point of view though not from a parental point of view, Mira’s NICU course was unremarkable, at least once she was stabilized and started to gain weight. As recently as the 1970s, she might have been simply allowed to die in the delivery room, since she was under 1,000 grams. But in the context of today’s high-resource NICUs, Mira was relatively unremarkable. She was your average one-and-a-half-pound baby whose heart stopped several times a day, who needed blood transfusions to stay alive, who needed life support to breathe, eat, and stay warm.

When Mira was born, I felt uniquely bad at gestation, when I was actually one of almost a half million mothers who would give birth early in the United States that year. I didn’t know that our family’s private gauntlet was a small part of a worldwide public health emergency.

For most of human history, gestation was a solo affair, and it either resulted in a living baby and surviving mother or, lots of times, it didn’t. Left to nature, most preterm babies die. In today’s NICUs, most of them survive.

Throughout the middle and latter half of the twentieth century, extraordinarily headstrong doctors and scientists were willing to risk their reputations to argue that something more could and should be done for the tiniest babies. As a result, in two generations, we’ve gone from having essentially no treatment for premature babies to flirting with viability just past the midpoint of pregnancy.

It’s changed the way we think about babies and our obligations to them. It’s changed the ways we understand what it means to be alive, what it means to be human, and what constitutes a life worth living. At least for the moment, it messily defines abortion law in the United States, since “viability” is determined by neonatology’s success. (As I write this, several states have passed clearly unconstitutional laws that essentially outlaw abortion, with the goal of getting the Supreme Court to reconsider and potentially overturn Roe v. Wade , which established the right to an abortion up to viability.) Premature birth—and which groups suffer from it the most—reflects back all the deep racial and economic injustices that plague the United States.

And sometimes, the project of treating premature babies reflects what is best and most beautiful in all of us: that we will go so far for a single human life; that some people dedicate their lives to the children of others; that love of all kinds can burn so bright.

Amol likes to think of Mira having a superhero origin story: She battled the machines and lived. Now she carries hidden power. I sometimes think of it as a fairy tale—the old, dark kind—a girl who had to find her way through a dark wood full of sharp teeth, alone and brave before her time. I think we are both trying to describe how her birth and her struggle feel fundamental: at the intersections of birth and loss, science and humanity.

Part I Contents Cover Title Page AN INTIMATE HISTORY OF PREMATURE BIRTH And What It Teaches Us About Being Human Copyright Dedication Author’s Note Prologue: One Birth Part I: The Unexpected: Millions of Births 1. What Happened? 2. Treatments and Outcomes 3. Viability and the Zone of Parental Discretion Part II: The Body: Incubation 4. The History of Incubation: Coney Island, Chicken Eggs, and Changelings 5. The Modern Incubator, or How to Build a Giraffe 6. The Incubators of the Future: Babies in Bags Part III: The Breath: Treating Respiratory Distress 7. Dr. Mildred Stahlman and the Miniature Iron Lung 8. Dr. Maria Delivoria-Papadopoulos and the Rugged Machine 9. JFK’s Lost Baby and the Advent of Surfactant Part IV: The Self: Protecting the Premature Brain 10. The Revolutionary Practice of Listening to Preemies 11. Follow-up Care: Preemie Development Beyond the NICU Part V: The Threshold: End-of-Life Issues at Birth 12. What Should We Do for 22-Week Babies? 13. Knowing When to Stop 14. Choice, Decisions, and the Messiness of Real Life Part VI: The Crisis: The Body Under Stress 15. Racism Causes Preterm Birth 16. What Prematurity Means in Mississippi 17. Group Prenatal Care and the Power of Community Part VII: The Invisibles: Breaking the Silence 18. The Hidden Trauma of Prematurity 19. Grown Preemies Speak for Themselves Epilogue Notes Index Acknowledgments About the Author About the Publisher

Конец ознакомительного фрагмента.

Текст предоставлен ООО «ЛитРес».

Прочитайте эту книгу целиком, купив полную легальную версию на ЛитРес.

Безопасно оплатить книгу можно банковской картой Visa, MasterCard, Maestro, со счета мобильного телефона, с платежного терминала, в салоне МТС или Связной, через PayPal, WebMoney, Яндекс.Деньги, QIWI Кошелек, бонусными картами или другим удобным Вам способом.

Тёмная тема
Сбросить

Интервал:

Закладка:

Сделать

Похожие книги на «An Intimate History of Premature Birth»

Представляем Вашему вниманию похожие книги на «An Intimate History of Premature Birth» списком для выбора. Мы отобрали схожую по названию и смыслу литературу в надежде предоставить читателям больше вариантов отыскать новые, интересные, ещё непрочитанные произведения.


Отзывы о книге «An Intimate History of Premature Birth»

Обсуждение, отзывы о книге «An Intimate History of Premature Birth» и просто собственные мнения читателей. Оставьте ваши комментарии, напишите, что Вы думаете о произведении, его смысле или главных героях. Укажите что конкретно понравилось, а что нет, и почему Вы так считаете.

x